Momentum Builds in Rett Research as RSRT Awards a Record $7.2 Million in 2013
Since RSRT’s inception just five years ago, the organization has committed almost $20 million to novel research and basic science to decode and defeat Rett Syndrome. Learn about our latest awards which include two Consortiums, clinical trials, industry collaboration and more.
The following are national and international Rett Syndrome organizations who financially contribute to RSRT’s research program. We are honoured and grateful for their commitment and their trust.
Rare Disease Day
RSRT joins organizations around the world to celebrate Rare Disease Day.
RSRT Trustee, Prof. Adrian Bird, receives knighthood
Sir Adrian Bird, we congratulate you and wish you the very best for 2014 – may the discoveries continue.
2012 Annual Report
Our latest annual report is a bit unorthodox as the financial information is from 2012 but the research information is through 2013.
On April 23rd in New York City RSRT presented an event entitled "Curing Rett Syndrome – How Do We Get There?" The event was videotaped and is now available on RSRT's YouTube channel.
Curing Rett Syndrome – How Do We Get There?
Ben Philpot, Ph.D.
Gene Awakenings for the Treatment of Neurological Disorders
Therapeutic Strategies for Rett Syndrome
November 12-14, 2012
This past November in a peaceful New York City suburb, twenty-eight scientists gathered for a three-day meeting organized and sponsored by RSRT. In the age of email and Skype and webinars and GoToMeeting and a plethora of ways to connect people from across the world with a click of a mouse why does RSRT spend hard-earned money to bring scientists together for face-to-face meetings? Find out ...
RSRT joins Cystic Fibrosis Foundation, JDRF, Michael J. Fox Foundation, Leukemia & Lymphoma Society and others in a report that highlights insights and perspectives from leaders of 20 venture philanthropy groups that are transforming the cure enterprise.
RSRT: “Doing it the right way”
"It is more difficult to give money away intelligently than it is to earn it in the first place."
Watch a short video clip from Prof. Adrian Bird discussing the challenges that charities face when allocating funds and why, in his opinion, RSRT is doing "it" the right way.
Together, we can change this!
A poignant video describing how having a daughter, sister, cousin, grandchild, niece, friend with Rett Syndrome affects a family. The video was created pro bono by Jason Rem Entertainment.
Newly DiagnosedWe understand, we’ve been there too
MECP2 Duplication SyndromeCommon gene — Common goal
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