RSRT Hosts Two-Day Science Meeting

RSRT Hosts Two-Day Science Meeting

Besides every active mutated MECP2 gene is a healthy dormant one...what if we could wake it up? This burning question was the focus of a meeting in mid May in Chapel Hill, NC. Our blog reports on the meeting.

UMASS Highlights Rett Syndrome and the work of RSRT

UMASS Highlights Rett Syndrome and the work of RSRT

RSRT Advisor, Huda Zoghbi, wins March of Dimes Prize in Developmental Biology

RSRT Advisor, Huda Zoghbi, wins March of Dimes Prize in Developmental Biology

Momentum Builds in Rett Research as RSRT Awards a Record $7.2 Million in 2013

Momentum Builds in Rett Research as RSRT Awards a Record $7.2 Million in 2013

Since RSRT’s inception just five years ago, the organization has committed almost $20 million to novel research and basic science to decode and defeat Rett Syndrome. Learn about our latest awards which include two Consortiums, clinical trials, industry collaboration and more.

Read the press release.

RSRT Trustee, Prof. Adrian Bird, receives knighthood

RSRT Trustee, Prof. Adrian Bird, receives knighthood

Sir Adrian Bird, we congratulate you and wish you the very best for 2014 – may the discoveries continue.

Rett Syndrome: A Father’s Words

Rett Syndrome: A Father’s Words

We invite you to watch this powerful video created by Jason Rothschild which debuted at the Reverse Rett NYC event on November 7th.

This study is the first to show reversal of symptoms in fully symptomatic mice using techniques of gene therapy that have potential for clinical application.

The following resources help explain the results.

Press release
Video Interview with Mandel lab

RSRT-funded Study Shows Cholesterol-Lowering Drugs Suppress Rett Symptoms

RSRT-funded Study Shows Cholesterol-Lowering Drugs Suppress Rett Symptoms

RSRT has invested $1.5 MM to uncover modifier genes of MECP2. The investment is beginning to deliver. The following resources help explain the results.

Press Release
Video Interview with Dr. Justice

The Rett Syndrome Protein Surrenders Some of its Secrets

The Rett Syndrome Protein Surrenders Some of its Secrets

We are providing the following resources to help you understand the progress being reported today.

Press Release
Animation
Bird lab video interview
Greenberg lab video interview

On April 23rd in New York City RSRT presented an event entitled "Curing Rett Syndrome – How Do We Get There?" The event was videotaped and is now available on RSRT's YouTube channel.

Monica Coenraads
Curing Rett Syndrome – How Do We Get There?

Ben Philpot, Ph.D.
Gene Awakenings for the Treatment of Neurological Disorders

RSRT joins Cystic Fibrosis Foundation, JDRF, Michael J. Fox Foundation, Leukemia & Lymphoma Society and others in a report that highlights insights and perspectives from leaders of 20 venture philanthropy groups that are transforming the cure enterprise.

Learn more ...

RSRT: “Doing it the right way”

RSRT: “Doing it the right way”


"It is more difficult to give money away intelligently than it is to earn it in the first place."
     -Andrew Carnegie

Watch a short video clip from Prof. Adrian Bird discussing the challenges that charities face when allocating funds and why, in his opinion, RSRT is doing "it" the right way.

View the video ...

Together, we can change this!

Together, we can change this!

A poignant video describing how having a daughter, sister, cousin, grandchild, niece, friend with Rett Syndrome affects a family. The video was created pro bono by Jason Rem Entertainment.

View the video ...

PAUSE
PLAY

A cure for Rett Syndrome
It's our obsession

Imagine the symptoms of autism, cerebral palsy, Parkinson’s, epilepsy, and anxiety…all in one little girl. This is Rett Syndrome.  RSRT exists for one reason – to make these symptoms disappear. We are focused, impatient, rigorous and optimistic. Whether you are a parent, relative or friend of an afflicted individual, a researcher interested in helping us eradicate Rett Syndrome, or someone seeking to learn more about the disorder and RSRT, we welcome you to our site and invite your participation in our fight to conquer Rett.

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