Newsletter - RTT Watch

Welcome to RTT Watch, a forum to share information relevant to our mission: curing Rett Syndrome and MECP2 spectrum disorders. This is a time of opportunity. Let's not waste a moment of it.

REGISTER HERE to stay apprised of new information and critical research developments.


ISSUE ARCHIVES:

• New Research Trust Dedicated to Furthering Treatment of Rett Syndrome Launched in the United Kingdom

• RSRT Adds Eighth Project to Research Portfolio
• RSRT Financial Update

Issue #17 [June 28]

Issue #16 [March 2]

RSRT News

• Rett Syndrome Featured on the Charlie Rose Show
• Give our Girls a Voice Video Wins the "Extraordinary Measures" Contest
• Show Us Your Goodness
• Eva Fini Fund at RSRT
• Reverse Rett Gala Boston + Upcoming Events
• Purchase Invitations/Announcement and Support Rett Research
• TFWA Care
• Kate Foundation

For Parents and Caregivers of Children with Rett Syndrome

• Scoliosis in Rett Syndrome
• Rett Syndrome Center Parent Gathering (Bronx, NY)
• Fundoplication: Opinions on Efficacy

Issue #15 [February 25]
Issue #14 [January 25]

2009

Issue #13 [December 18]

• Gene Therapy Success Story for Brain Disease
• The Upside of Genetic Mutations - an Interview with Monica Justice, PhD
• We Are All Mutants
• Ask President Obama to Make Biomedical Research a National Priority in FY 2011
• JUST RELEASED: Cognitive dysfunction reversed in mouse model of Down syndrome - Read more on our blog

RSRT News


• New Awareness Video Launched
• Brochure Available
• Podcast
• Los Angeles and NYC Events
• Letter-Writing Campaign

For parents and caregivers of children with Rett Syndrome


• Video Presentations /Holiday Party Invitation
• Scoliosis Surgery in Your Child's Future - This is a Must Read!

Issue #11 [September 14]

• Building on Progress Reversing Childhood Neurological Disease,
  Rett Syndrome Research Trust Establishes Professional Advisory Council       
  James Gianopulos, Chairman and CEO of Fox Filmed Entertainment, Joins Council with Other Prominent Members
  

Issue #10 [August 31] 

• Common Variations in the Rett Gene Influences Brain Size in Typical Population
• Reprogrammed Human Cells Shed Light on Rare Disease
• Gene Mutations: Not Always Bad!
• Rett Syndrome Gene Discovery: Ten-Year Anniversary
• Reverse Rett Gala - Diane von Furstenberg Studio, New York City [October 29, 2009]
• Hope for Hannah - Los Angeles, CA [October 15, 2009] 
• Parent Gathering at Rett Clinic (Montefiore Children's Hospital, Bronx, NY)
• Daily potassium citrate wards off kidney stones in seizure patients on ketogenic diet
• Photos and videos needed

Issue #9 [August 24]

• Rett Syndrome Research Trust Funds Innovative Research at UCSF to Accelerate Drug Discovery

• VIDEO: Curing Rett Syndrome - How Do We Get There?

• RSRT Advisor Makes Transformative Breakthrough in Stem Cell Research
• President Obama Picks Francis Collins as NIH Director
• Your help is needed - TWO SURVEYS
• Agent used in spinal surgery linked to higher complications rate Acid-reducing medicines may lead to dependency
• Do you have a son with an MECP2 mutation?
• Photos and videos needed

• Nobel Laureate J. Michael Bishop Joins the Scientific Advisory Board of the Rett Syndrome Research Trust
• New Additions Also Include Christopher Lipinski and Axel Unterbeck

• Novel Study Suggests That Yet Another Neurodevelopmental Disorder May be Reversible
• RSRT Advisor Makes Unexpected Finding
• New York Times Article Lends Support to RSRT's Sponsor a Drug Initiative
• Encouraging Results for ALS Bolsters RSRT's Project
• Faster Cures Blogs About the Valley of Death
• U.S. Senator Arlen Specter Introduces The Cures Acceleration Network (CAN) Act with Support of RSRT
• Autism Speaks Strategic Plan for Science 2009-2011 Includes Rett Syndrome

• RSRT Financials
• RSRT Awards Funding for New Project
• Unique Nerve-Stimulation Device Proves Effective Against Epilepsy
• New Research Suggests Common Anti-Seizure Medications May Increase Risk of Cardiovascular Problems
• Two reviews assess the dual positive and negative effects of folate intake

• RSRT Advisor Makes Significant Discovery

• Science Investment in Economic Recovery
• Sponsor a Drug Family Challenge Winner
• Article in Neuron - Reversing Neurodevelopmental Disorders in Adults
• Study: Fosomax-type drugs linked to jaw necrosis