If healing your child would heal your heart, 
we invite you to join our effort.

Whether you are the stunned and grieving mother and father of a newly diagnosed baby, or the seasoned parents of a thirty-year-old whose potential has been locked in by Rett Syndrome since she was a small child, our message to you is that this fate is unacceptable.

Taking this stand is not a simple task for a parent while doing all that daily nurturing requires, rejoicing in each small step our child can accomplish and grateful for any amelioration of pain and stress. But visionary leaps are not achieved through acquiescence or passive hope.

The Rett Syndrome Research Trust is a determined and highly focused research organization engaging the most brilliant scientific minds. The task of unlocking the mechanisms of Rett Syndrome and related MECP2 disorders is difficult and important. The restoration of normal human function in such a complex syndrome has enormous implications for a much greater population. Twenty-first century science is moving very rapidly; a new paradigm of what is possible has already been established for Rett Syndrome, and that is the starting point of the Rett Syndrome Research Trust.

If healing your child would heal your heart, we invite you to join our effort.  For information on how you can make a meaningful contribution to this work, please contact us.  

Banner image - Individual neurons from the cerebral cortex of a genetically modified "brainbow mouse". The image is taken using a confocal microscope.
Photography courtesy of Jean Livet/Nature