Monica Coenraads
Co-Founder, Trustee, Executive Director
Monica Coenraads' involvement with Rett Syndrome began the day her then two-year-old daughter was diagnosed with the disorder. A year later, in 1999, she co-founded the Rett Syndrome Research Foundation and held the position of Scientific Director during the eight years of the Foundations's drive to stimulate scientific interest and research in Rett Syndrome, culminating with the groundbreaking work in 2007 which demonstrated the first global reversal of symptoms in preclinical models of the disorder.  Monica co-founded the Rett Syndrome Research Trust in late 2007 as an agile, aggressive successor to pursue the next steps from that milestone.
 

As Executive Director she oversees all aspects of the organization including day-to-day operations, strategic direction, fundraising and communications. With input from her advisors and the scientific community at large, Monica sets and executes the Trust's research agenda.

Monica is an advisor to the Rett Syndrome Program at Children's Hospital Boston and the Rett Syndrome Center at the Albert Einstein College of Medicine. She is a member of the Society for Neuroscience and founding trustee of the American Brain Coalition. She was awarded Redbook magazine's Mother & Shaker Award, alongside Katie Couric and Matilda Raffa Cuomo. In 2006, the Howard Hughes Medical Institute highlighted Monica's efforts in the November issue of the HHMI Bulletin.

Monica has an MBA with an emphasis in International Business from the University of Connecticut. She lives in Trumbull, Connecticut with her husband, Pieter, and their three children.

Contact




VIDEO:
Curing Rett Syndrome -
How Do We Get There?
Click here to watch video presentation given by RSRT Executive Director, Monica Coenraads.
Rett Syndrome Research Trust. © Copyright 2008