Rett Syndrome News and Happenings

New data:  Rett Protein Redefined
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Building on Progress Reversing Childhood Neurological Disease, Rett Syndrome Research Trust Establishes Professional Advisory Council       
James Gianopulos, Chairman and CEO of Fox Filmed Entertainment, Joins Council with Other Prominent Members
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Curing Rett Syndrome - How Do We Get There?
Video presentation by RSRT Executive Director, Monica Coenraads.

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Nobel Laureate J. Michael Bishop Joins the Scientific Advisory Board of the Rett Syndrome Research Trust
New Additions Also Include Christopher Lipinski and Axel Unterbeck
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RSRT Financials Available Online

Our 2008 audited financial statements and 990 are now available. Our numbers reflect RSRT’s commitment to our current as well as future supporters: 98% of every dollar donated was channeled directly to our research program.  

RSRT has one focus and one focus only: Rett research. In keeping with this focus RSRT committed $2.4 million of funding to Rett Syndrome research projects in 2008, more than any other Rett Syndrome non-profit organization in the world. 




RSRT Advisor Makes Significant Discovery
Opens the door to novel therapeutic approaches


A paper in Nature Neuroscience reveals new findings about glial cells and Rett Syndrome. RSRT advisor Gail Mandel, Ph.D. shows that contrary to previous assumptions, glia (which comprise 90% of all brain cells) contain MECP2. In Rett Syndrome, she discovered that glia with mutated MECP2 may be poisoning healthy neurons. She also demonstrated that healthy glia are able to significantly ameliorate mutant MECP2 neurons in vitro. Read about her work and new directions for therapeutic intervention.

RSRT issued press release
In-depth interview with Dr. Mandel




RSRT is now on Twitter

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Rett Syndrome Media Campaign in Israel
Shmulik Zysman, Chairman of the Israeli Rett Syndrome Center, is spearheading a media campaign to raise research funds in support of RSRT's projects. Mr. Zysman, who is a household name in Israel from his days as a star player for Maccabi Tel-Aviv and Israel’s National Basketball Team, now runs a successful international law firm.

Highlights of the campaign include a high-profile article in the leading paper and public service announcements on Israeli TV.  RSRT is honored to partner with Mr. Zysman and the Israeli Rett Syndrome Center.   

 

 



Banner image - Part of the hippocampus of the brain of a genetically modified "brainbow mouse".  The image is taken with a confocal microscope.
Photography courtesy of Jean Livet/Nature